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At 23, Tia Rey was diagnosed with antisynthetase syndrome in 2024, a rare autoimmune condition causing muscle inflammation, joint stiffness, and lung issues.
Previously healthy, Rey noticed a rash and swollen fingers, leading to symptoms that now limit her mobility and career as a customer care adviser.
She manages pain with steroids and is exploring rituximab infusions, which cost £10,000 privately.
A fundraiser supports potential treatment costs, with promises to refund donors if NHS funding is secured.
Despite fatigue, breathlessness, and heart complications, Rey remains optimistic, valuing life more deeply.
Her journey sheds light on the challenges of living with a rare disease, balancing medical treatment with personal aspirations, and navigating uncertainties about her future.
2025-09-10 12:18:00



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