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Bruce Willis's wife, Emma Heming Willis, has opened up about their life since his 2022 diagnosis with frontotemporal dementia (FTD), a disorder impairing language comprehension and formulation, initially announced as aphasia.
In her book, 'The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,' the 47-year-old actor and model aims to raise awareness.
She described, 'Bruce and I now have our own language, our own way to be with each other.
It's just about sitting with him, walking with him, listening to him as he tries to verbalise in his own language.
Hearing him, validating him.' She added, 'It's hard.
FTD is just an unkind disease; it constantly takes.
Even when you think it can't take any more, it takes a little more.' The couple shares daughters Mabel (13) and Evelyn (11), while Bruce has three daughters—Rumer, Scout, and Tallulah—from his marriage to Demi Moore.
Heming Willis discussed moving Bruce to a separate house nearby for round-the-clock care, avoiding a care home: 'It was one of the hardest decisions I ever had to make.
But among the sadness and discomfort, it was the right move for him, for our girls, and for me.
Ultimately, I could get back to being his wife.
And that's such a gift.' This allows independence and 'dude hangouts' with friends on Fridays.
'It's made such a difference for more friends and family to have their own experience with him without it being my home, without me hovering...or my anxiety of how to manage the guest and their expectations, and then have to see their reactions, their sadness at what is.' The book chronicles their experiences, emphasizing hope amid caregiving challenges.