Autistic people often face unique and difficult challenges during the menopause transition, according to a new review that reveals a stark reality of struggle and inadequate support.
Menopause, which technically marks a single day, is often part of a much longer and more disruptive phase of life known as the menopause transition, encompassing perimenopause and post-menopause.
While common symptoms like hot flushes, night sweats, and changes to mood and memory are experienced by the general population, the review found that autistic individuals sometimes experience these symptoms with a higher intensity.
A key finding was the increase in sensory sensitivities for some, which can lead to more frequent and extreme 'meltdowns'—moments of overwhelming distress.
Fatigue was also reported as a major issue, making it particularly difficult for those who 'mask' their autism to hide or manage their traits, with many reporting that masking became harder or even impossible during this period.
The research, which pooled evidence from eight studies and publicly available blogs, also found that most autistic people were unaware of what was happening to them when symptoms began, as they lacked access to information that spoke to their needs.
While some found peer support groups helpful, they expressed a preference for information from trusted sources like doctors.
A significant issue is the lack of support from the healthcare system, with almost all autistic people reporting negative experiences.
This is unacceptable, especially given that autistic individuals already face worse health outcomes.
Researchers Aimee Grant, Harriet Axbey, and Rebecca Ellis, who co-authored the review, emphasize that a rethink is needed on how to better support autistic people.
They call for better training for healthcare professionals, the co-design of autism-specific resources with autistic people, and proper investment in peer support services.
This under-researched area has significant effects on health and wellbeing, making adequate support for autistic people going through menopause essential.
Menopause, which technically marks a single day, is often part of a much longer and more disruptive phase of life known as the menopause transition, encompassing perimenopause and post-menopause.
While common symptoms like hot flushes, night sweats, and changes to mood and memory are experienced by the general population, the review found that autistic individuals sometimes experience these symptoms with a higher intensity.
A key finding was the increase in sensory sensitivities for some, which can lead to more frequent and extreme 'meltdowns'—moments of overwhelming distress.
Fatigue was also reported as a major issue, making it particularly difficult for those who 'mask' their autism to hide or manage their traits, with many reporting that masking became harder or even impossible during this period.
The research, which pooled evidence from eight studies and publicly available blogs, also found that most autistic people were unaware of what was happening to them when symptoms began, as they lacked access to information that spoke to their needs.
While some found peer support groups helpful, they expressed a preference for information from trusted sources like doctors.
A significant issue is the lack of support from the healthcare system, with almost all autistic people reporting negative experiences.
This is unacceptable, especially given that autistic individuals already face worse health outcomes.
Researchers Aimee Grant, Harriet Axbey, and Rebecca Ellis, who co-authored the review, emphasize that a rethink is needed on how to better support autistic people.
They call for better training for healthcare professionals, the co-design of autism-specific resources with autistic people, and proper investment in peer support services.
This under-researched area has significant effects on health and wellbeing, making adequate support for autistic people going through menopause essential.
